They started the third Intravenous immunoglobulin (IVIG) last evening, it ended at 3 am this morning, his counts, hemoglobin, didn't go in the right direction, they've gone down to 4.9. They will try one more IVIG, waiting for hematology doctors to confirm, may do one more after this. Depending on how he responds will dictate what they do next, no improvement he will have surgery to remove his spleen.
At this time they are not sure if they will give him another blood transfusion, his body is just chewing up the good red blood cells.
There has been some discussion about ICU again, but his vital signs are good, if they change they will move him to ICU. I accepted a small defeat with this and have temporarily taken his go home clothes out to the car so if we have to move rooms I'll have less to worry about moving. No matter what, I'll still be able to stay with him 24/7, just don't know if I'll have a bed to sleep in if we move to ICU. I'll manage.
He's not eating well, got sick twice yesterday, this morning I saw Rice Krispie treats in the vending machine - he ate it all up - hoping it stays down. With Austin I'm not sure if he's getting sick because of stomach upset or his anxiety, playing everything one minute, one hour, one day at a time.
Hard to believe this is day # 7, will be so happy when I have him back home again and some of the simple things he does will begin to bug me again (like having the TV in his room, the living room on and also on the computer, youtube, singing the Barney "I Love You" song over and over again.
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