Doctors appointment for Austin today, sadly we got there early (like to be punctual) and had to wait and wait.
Our regular doctor was out but we knew that was coming, we were scheduled with someone else. She had a beautiful 8lb baby boy yesterday and from what I heard they are all doing very well. She is already missed by the staff, Austin and I. After being there over 1.5 hours I asked if we could just have someone fill out a release form so Austin could go back to school.
He was doing a great job waiting but in situations like this one never knows how long it will stay good. That's life living with one on the autism spectrum, things can change in a blink of an eye.
Thankfully, the head of the department, hematology/oncology, who attended to him while he was in the hospital was available and she saw us instead (bonus - this worked out well for the two patients waiting behind us - shortened there wait, moved them up).
It was a very typical appointment, temp, blood pressure and they told me numbers looked good, typed up our release and in five minutes we were done. Dr. D was very pleased in how well the Rituximab treatments had worked in bringing his numbers back up to the normal range.
It almost feels like years ago when I had to sit down with the girls and tell them about this treatment, when in reality it's only been three months. I was a little worried about that first round and knew that I couldn't hold back anything on the risks of the treatment with the family - a single treatment could be fatal. Just six months ago I would have never dreamed that I'd have to have life or death discussions with the girls, explaining that we were in a no win situation, we had to go with the treatment otherwise his condition would have been fatal. On some days it feels like I have aged 100 years and on others, most of the time, I am just so happy we have today.
Blood draws will be every other week now and we can go back in six weeks (instead of four) so they can take his temp, blood pressure and hopefully once again tell us all numbers look good. $30 every time we walk into the office for this routine, makes me cringe a little but what can we do - too bad we can't have e-visits.
Breathing a little easier with each passing day, hoping we stay the course.
Austin was rewarded with a couple of his favorite items for doing so well waiting, a Dew and a small bag of M & Ms. Naturally during the wait I think I heard twice a minute "I'm hungry" :-).
We ended up leaving the hospital just in time. When we got down to the lower self-park area it was starting to fill with smoke. And, Austin said "Holy Smoke Batman" :-). As we were almost out we had to pause to let the police go by. I'm happy we got out of there when we did because I didn't want the Flex smelling like smoke for months to come.
He's happy to be home and once again the History channel is on the TV - I'm looking forward to 4/28 from 8 am until 1 pm there will be NO History channel on the TV. The TV won't even be on :-).
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